Photo Bomb!

Merry Christmas!

I can't believe it has been so long since I posted! No news is good news though, right? Well mostly! Fiona has been doing GREAT with weaning off the vent. We are now working at nighttime because she is off pretty much all day. The only problem we have had is that she coughs so much when she is off that she throws up (I can't remember if I have written this before, haha!). So we just got a humidifier the other day that she can be hooked up to when she is off the vent. We haven't had to use it yet though. Her eating is not going as well as the vent weaning! From 2 weeks ago until last week she had lost 6 oz and her nutritionist was not very happy about it. We are trying EVERYTHING we can to get her to eat and get as many calories into her as possible. Thanks to another O mama, we are now putting heavy cream in 2 bottles a day. There are 50 calories in 1 tablespoon! We are also melting sweet cream butter and mixing it into her baby food. We have an appointment tomorrow with a feeding clinic in DuBois. I hope they figure something out. They will evaluate her and then let her OT know if they have any suggestions or anything. We also just found out that Fiona will be having her 2nd O surgery on February 2nd! We didn't think it would be so soon, but are very excited! Still kind of nervous, but since we know what to expect now it isn't so bad. We are hoping they can do her sleep study while she is down there for her surgery. They have to do a sleep study before they can take her trach out. We honestly think at this point that she would be fine without it. We think it is causing more problems than helping! The only issue is that sometimes she stops breathing while she is sleeping so she might need a nasal cannula or something to help her out a bit until she outgrows that.
We had a wonderful Christmas. Fiona got a TON of stuff. We have no idea where we are going to put it all! Tom and I have amazing families. THANK YOU TO EVERYONE :)