Yes, I know I am a day late! But we have had a busy weekend! Saturday we went to Big Poppa's (my grandpa) house for Easter dinner with my family. Then yesterday we went to Nana's (Tom's mom) house for lunch then to NeeNee and Poppa's (my mom and dad) house for an Easter Egg hunt and dinner, then back to Nana's for a little bit. While we were at NeeNee and Poppa's house she gave us a little scare. When we are out she doesn't have the humidifier like when we are at home so her secretions dry up in the trach. At 4 it was time to give her her breathing treatment which must have loosened everything up and clogged it causing her to turn blue because she didn't have enough oxygen. Luckily once we turned her oxygen up a little she was fine and I suctioned the goober out of there. We don't need any more of that!
We have a new feeding schedule! She now gets fed continuously from 11pm to 7am at 41cc/hr. We then feed her 65cc at 11am, 3pm, and 7pm. This gives her 4 hours in between feedings during the day instead of 3. It has helped a little, nothing drastic though. Hopefully OT will be able to help. I think I might look around and see if I can find a feeding specialist that we could take her to.
I think I mentioned that when we went to Pittsburgh that we got a new belly support made for her when she's in the carseat. Well it already doesn't fit. Her O is definitely getting bigger. I called the surgeons to see what they thought (actually I just talked to the nurse). She said that as long as she is tolerating her feeds and not throwing up, and still pooping that she didn't think it was anything to be concerned about. She said it's going to grow as she grows. UGH... some days it just seems HUGE and it seems like it is growing faster than she is. I am probably over reacting though!
Speaking of huge, Fiona weighs 10 lbs 4 oz now!! And she is 20.5 inches long! She is getting to be a chubby little thing. She honestly looks like the Michelin Man with her arm and leg rolls haha! She is so darn cute though!
On a side note: Tom has built a deck for us so that we can take Fiona outside now! And he will be putting a ramp on it soon so we can wheel her kid cart right into the house!
What a cute pic! That makes sense about the O growing as she does. Sounds like she's gaining weight well and I hope the breathing spells get better soon.
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