8 Months!!

Fiona was 8 months old on the 20th!

Update on the scope (actually called a Bronchoscopy and Laryngoscopy!): It went really well. Except for the fact that we had to be there at 7 am, haha! We had to leave our house at 4 am. Poor Tom (he drove)! Anyway, we got there at about 6:40 and were taken right back to the recovery room since she is on a ventilator, so we didn't have to wait in the waiting room. They came to get her at about 8 and Tom and I went to the waiting room. About 15 mintues later the Dr. came to talk to us and she was done already! We had to wait about another 10 minutes for her to wake up and then we went back to get her. They actually ended up not even putting her to sleep. They just gave her some pain medicine to make her a little sleepy. Dr. Mehta (her ENT) said that everything looks good. There were a couple of things that he explained to us. He saw a very small piece of her left lung was collapsed, and her airway braches of into her lungs at a spot that it is not supposed to, but that neither thing was anything to worry about. He also had to remove a small amount of granulation tissue which is a very common thing. Overall it went really well and we got some crazy looking pictures of her airway and voice box and vocal chords, haha!

Since then we have been having lots of trouble with throwing up. We also have been having to suction her more. We have no explanation for either thing and are just trying to figure out what's going on. We thought maybe it had to do with the scope, but the Dr. said it shouldn't. We think the throwing up is partly because she is getting more air (because we are making her bottles so thick with cereal for the extra calories we can't use the insert that prevents her from getting so much air). She probably has to burp, but it is so hard to burp her. Most of the time she doesn't burp for a couple hours after she eats and then sometimes still throws up, so who knows. It also may have something to do with her O being wrapped with the ace bandage. I'm sure if my stomach was being squeezed I would throw up too!

It is so neat to see her growing developmentally! She loves when people clap for her and when you make her clap, but she can't quite do it herself yet. She started bouncing up and down while she is sitting and it looks like she is dancing. We have started using signs when we talk to her. Mostly mommy and daddy and bottle. I can't wait until she can start doing them! She loves to grab her feet and legs and has started putting her feet in her mouth! We are still really working on putting weight on her legs and working towards getting her to sit up on her own. We have been trying to get her to eat solids, but she doesn't like them! She does ok with tiny little tastes, but won't actually take a whole bite.

Her O is FINALLY ALL SKIN!! YAY!!

Our next appointment is next Tuesday (August 3) with Surgery, Pulmonology, and ENT. Her surgeon will decide if she is ready for surgery yet. And hopefully Pulmonology will turn down a setting on her ventilator!