Splashing around in the pool!
Taking a nap with daddy!
First time sitting up like a big girl in the bumbo!
Miss Fiona weighs in at 11 lbs. 7 oz. now!
So here are updates on things since the last post: We tried 2 weeks ago to take Fiona's NG tube out because she was doing so well eating from the bottle! She actually did really well eating but then starting throwing everything back up. She couldn't even keep down Pedialyte, so we had to put it back in. We left it in for the 5 days until it was time to change it again and she has had it out since last Tuesday! She is doing awesome eating! Before she was getting fed 65 mL every 4 hours. Now we are just kind of feeding her whenever she is hungry and she is sometimes taking 70 or 80 at a time. Last night Tom even got her to take 100 at one feeding and 90 at another! Her nutritionist doesn't know that the tube is out yet. I am kind of nervous to tell her because some days Fiona doesn't get exactly everything she should. But we saw her surgeon last week and he said that as long as she is still gaining weight that we shouldn't worry about it. He told us to start putting cereal in every bottle just to give her some more calories. Keep your fingers crossed that it stays out this time! I am so happy that we have one less thing to worry about right now.
So when we saw the surgeon he was very impressed with the rest of the skin growth on her O. She has one tiny tiny spot left to cover over and then it will FINALLY all be skin! He told us to start putting lotion on the rest of it to make it nice and smooth, haha. He is overall so impressed with Fiona and how she is doing. He told us at least 5 times that she looked great! We're not quite ready to start putting things back in yet though.
We also saw Cardiology that day and that appointment went well too! The doctor said that on Fiona's list of problems that her heart is at the bottom! It doesn't look like there will be any heart surgeries in the future, YAY! They just need to keep an eye on her because sometimes when there are lung problems it can start to affect the heart. But they said there is still a very good chance of both of her holes closing on their own!
She is doing awesome with OT and PT. She is holding her head up pretty good now. Still not quite where she should be, but much much better! She is constantly eating her hands and fingers and started reaching and grabbing for things with both hands. She is always so happy and smiley! She is such a good baby!
This is all great news. She is really getting big. I heard that she went to breakfast with her cousins, NeeNee, Poppa and Big Poppa. That is wonderful. Nice to see that you are all able to be getting out.
ReplyDeleteSuper on the bottle feedings. Hope things continue to go well with that.
I can't wait to see her and hold her.
Much love,
Aunt Di