They took the NG tube out about 4 pm on Friday, but still wanted to wait a little longer to feed her. She got to eat for the first time yesterday morning! She took about 30 cc of Pedialyte for the nurse and then about 10 more for me. Since she did so well with that they said to go ahead and give her some formula. It always takes forever for them to bring up her formula from the "Formula Room" because they have to mix it so we just used what I had in the diaper bag. I have never seen her so excited to see a bottle! She ended up taking about 80 cc from that bottle and then eating 2 more times yesterday and kept it all down! At home we had been having issues with throwing up for awhile but *knock on wood* she hasn't thrown up here yet! It was always so hard to get her to burp and if you didn't get her to then usually after a couple hours she would burp, gag, and throw up. Well yesterday she was burping like a champ with no effort at all! What a thing to be proud of, haha! They shut her nerve blocker off at around 11am yesterday and she was doing really well tolerating the pain so they took it out around 4pm. After that she was kind of fussy all day and would cry every time you tried to move her or she would cough. So we decided to try just Tylenol first to see if that would help. She was still very fussy and uncomfortable and was crying a lot while I was holding her. I put her back in bed to get her ready for bath time and we turned on the lights and saw that her whole left side was bruised. Well that was obviously why the poor thing was in so much pain. So we washed her up and the nurse gave her some Morphine before we attempted to change her belly dressing. It worked so fast that you could tell she immediately felt better. It was so weird- I was actually queasy just thinking about how much pain she was in because of how bad the bruise looked. And I'm sure looking at her O didn't help me much. So I made Tom and the nurse change the belly dressing.
The skin is starting to peel off of it and it is oozing and bleeding, yuck. And for some reason I have an issue with stitches. Anyway, after her bath, belly dressing, trach ties, and suctioning, I fed her and rocked her to sleep and she seemed much more comfortable.
This morning we came in and she was sleeping, but needed fed, so I fed her and played with her a little bit and she seemed much better than she was last night. I even got a couple little smiles out of her! She is slowly coming back to life! The attending doctor came in while I was feeding her and said, "So I hear she is going home!" and we were like, "WHAT?!". Well at this point we are still not sure whether we are going home today or not. It is up to the surgeons when she is allowed to leave. We are trying to get some things in order and there is alot to do before she leaves. We have to know exactly what we are supposed to do with her O (which I think is what we were doing before it was all skin the first time), but we aren't sure if we are allowed to give her a bath and get it wet. She also needs her central line taken out. We need to know if they are sending her home with pain medicine if needed. And she usually eats Similac Advance, but because of the recall she is eating Enfamil right now, so we need to know what to do once we get home (how to mix it since she is on higher calories) because our stuff at home might be under the recall too. It would be awesome if we could go home today though! Hopefully I can get some pictures posted once we get home.
YAY!!! New pics are in order. Glad to hear Fiona is doing well and so are you guys!
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