Look How Far She's Come...

Look How Far She's Come...
11.20.09 3 lbs. 3 oz. 16 in.
*BELIEVE*

Monday, September 27, 2010

We Are Home!! (And O pictures)

WE ARE HOME!! YAY! We got to come home yesterday. We got home around 7:30 pm. We are so glad to be home! And Fiona is doing much better today. She is back to smiling a lot! Not QUITE back to her normal self, but I don't blame her, I'm sure her muscles still hurt.

Ok, so I decided to put up all of the picture that I have of her O from birth until now. I know a lot of people are curious as to what it looks like. And I also hope it might help with people doing research on Omphaloceles and the "paint and wait" method. I could not find much information, let alone real stories about Omphaloceles and especially the "paint and wait" method. Hopefully these picture will help parents see what the progression of skin will look like and how long it will take. Please don't go any further if you are grossed out by stuff like this!




CAUTION: O PICTURES BELOW!!!









These 2 were taken 3 days after she was born. You can still see through the sack. The darker parts are the intestines and I think the lighter part is her liver.

This one was taken at about 5 weeks. (they were putting the wound gel on it)


These 2 were taken at about 1 month.



These two at 1 1/2 months.


These two at a little over 2 months.




These three at about 3 months.



These two at about 7 1/2 months.


This was the day before her surgery. We were comparing the size to her monkey!

This was 2 days after surgery.

And this was when we got home last night (4 days post surgery). Again comparing the size to her monkey! You can see how the base is much wider now.
The skin is black because it's blood supply was cut off. It wasn't like normal skin that has it's own blood supply, so when it was seperated from the organs it lost all of it's blood. It will now probably peel off and the O will have to grow new skin again like it did at the beginning.

6 comments:

  1. So glad Fiona is home! I know you guys are ecstatic! The pics are so interesting--if it helps even one person out there who is going through the same thing, it will be worth it! You can really see how much smaller it is now. Praying she continues to heal beautifully and gets back to her old self really soon. God works the most awesome miracles, doesn't he?

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  2. Thanks for sharing those pictures! It definitely helps understand a little more for those of us who aren't familiar with it. I feel so bad for all she is having to go through! (and you too!) Hoping the recovery continues to go well!

    Elaine F.

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  3. It's so much smaller! I'm glad you guys are home and can rest and heal.

    Kate Carey

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  4. WOW! That's a LOT smaller! And I bet it'll be so much easier to do the final closure eventually, with how wide the opening is. :)
    Glad she's home!

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  5. So glad she's doing well and y'all were able to go home! Praying she continues to recover and get back to her normal self! :)

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  6. So happy for you guys! She looks great! Question: wound gel? Is that what they were covering her O with? Did y'all wrap it?

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