Keep the good news coming!

Well we got some good news today! One of our biggest concerns was whether or not Fiona's lungs would ever be strong enough to function on their own... and the Pulmonoligist said DEFINITELY!!! It might not be as soon as we had hoped for, but eventually they will get it together and be able to work on their own without the ventilator! I'm not sure if most of you know that she will still be on the ventilator when she gets the trach. And as for the trach, she is getting it for sure. She might actually be getting it tomorrow! First they said Friday and then when they came back to the room to get our consent, they said tomorrow! But it does depend on if there are any emergencies or anything like that. Tom and I kind of have a mix of emotions right now. We certainly never imagined her having to get a trach and it isn't by any means what we WANT, but now that we know she is getting it we are kind of excited to just move on to the next step. We are excited that she will be able to move around more without having to worry about pulling the tube out, that she won't have to get mad at that stupid tube in her mouth anymore, that she will be able to keep the binky in her mouth by herself, that we will eventually be able to bottle feed her, and most importantly that we will be able to bring her home!

She got a blood transfusion today, just because her hemoglobin was a little low this morning. As for her feeds, she is doing good at 2 cc/hr today. But since she is probably going to get her trach tomorrow they have to make her NPO (something latin for "nothing by mouth") at midnight. We're not sure how long they will have to keep it off, but then she has to start all over again at 0.5 cc/hr and work her way back up. And she pooped all by herself twice today, yay! She is a stinky little one. She has had some awful gas for the past few days! Her bed is so tall and I am so short that when I have to hold her down to do the dressing change my face is right by her butt and she must have thought it would be funny to fart in my face the other night!

Like I said, we're not sure what time she will be getting her surgery tomorrow, but I will be sure to post sometime afterwards. Just say some extra prayers for her tomorrow that everything goes well!