Look How Far She's Come...

Look How Far She's Come...
11.20.09 3 lbs. 3 oz. 16 in.
*BELIEVE*

Tuesday, January 26, 2010

More good news!


Well first of all, today was Fiona's due date! But the little stinker decided to come 67 days early (still seems crazy!)

We got some good news! If everything goes well with her feedings and vent weaning for the next few weeks they are going to think about transferring us to TIC (Transitional Infant Care). The name of the place is actually The Children's Home, but everyone refers to it as TIC. It is pretty much a mini hospital. It is staffed by doctors and nurses just like a hospital would be. But it is more of a home environment. We would be taking care of her and they are just there to help if we need it or to do things if we aren't there. Here is the link if you want to check it out:
http://www.childrenshomepgh.org/pediatricSpecialtyHospital.aspx

She is doing amazingly well with her feeds. Right now she is at 8 cc/hr! They decided to start increasing her by 1 cc/hr every 12 hours! She is having little to no residuals (milk left in her belly) which means she is digesting everything. She is also a pooping machine which is another good sign that everything is working like it is supposed to be!

She is good very well with her trach. She is much better with the pain than I would be! They only had to give her pain medicine on Friday and Saturday and since then she has been fine. It is still a little sore to touch, but that is normal. Tomorrow they will be changing it to a different brand and a bigger size. The brand they are changing it to has a little bit longer of a piece coming out of the hole and it is flexible so hopefully she won't pop it off as much! Last night she was being very cranky and every time she moved the vent tube would pop off, so Tom and I stood beside her crib for about 2 hours (maybe even longer) while one of us held the vent tube and the other held the binky in her mouth and rubbed her head, haha! She is already spoiled! The reason they are putting in a bigger one is because she has a pretty big leak, meaning that air comes out around the tube and out of her mouth. So she is not getting ventilated properly. Hopefully once they put the bigger one in they can go down on her settings a bit.

She also got her first round of shots yesterday and today...

We are hoping that at the end of this week or beginning of next that the Speech and Occupational Therapists will be able to start working with her. We would also like to get her out of that crib as much as possible! We should be able to start holding her again Thursday or Friday!

5 comments:

  1. It is so good to see her face! She is such a cutie! I can't believe that it is only your due date now. You have been through so much in the past 67 days! I am glad you keep getting good news. Keep posting new pictures, I check for them all the time!

    Elaine Field

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  2. Love reading the good news!!! Keep it coming, Fiona!!! We all love you already!!

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  3. Yayyy for good news!! I'm so glad to hear everything's going well. Rehab will be awesome when they get to start with her. I work with SLP's and OT's all day and can tell you that they are miracle workers!

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  4. She's a tough little girl! Hooray for good news! I hope you get to move to TIC very soon! :)

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  5. hi meghan. i am friends with kayla b. she diagnosed our son ethan with cancer when she was on rotation at chp. i always ask how you daughter is doing, please know i am praying. i also wanted to let you know my daughter was at tic, we have a bay girl sarah she was born at 27 weeks. tic is awesome, actually if you watched the video my husband ken and i talk on it and it shows sarah going home that day, if you have anyquestions please get in touch with me.
    kelly loney (i am on facebook also)

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